Tyler's Surgery

Our last day on our Disney vacation was so great!
But...
Early, early Sunday morning, Tyler started having some medical problems.
Tyler has an internal medication pump that continuously feeds a muscle relaxer strait to his spine so that his legs move more freely. It is called a Baclofen Pump. Well, sometime during our day at Disney world the pump stopped working properly and the flow of the baclofen stopped. Tyler went onto major withdrawals. Withdrawals are painful, scary, and life threatening. Inspite all of the muscle spasams, crying, and pain, Tyler kept saying "I has fun at Magic Kingdom!"
We were lucky and got our family on an early flight back home.
Brad and Tyler headed strait up to Primary Children's.
Over the next 24 hours we had trouble getting Tyler's pain and withdrawal under control. He was being heavily medicated with oral meds until we determined what was the best thing to do. During that time our Doctor "interrogated" his pump (they basically talked to it with a computer). We didn't know it at the time, but the interrogation made the baclofen start flowing again, and so Tyler had tons of oral medications in his body, and now all of his regular dose of baclofen. All of those medications hit him at once, and he was put into a very serious life threatening over dose. Tyler was unresponsive for 26 hours. The longest 26 hours of my life. All I did was sit and watch his oxygen saturation, and his respirations to make sure they did not drop too low. There were several times that he would just exhale, and wouldn't inhale until I shook him hard enough. There was even a time when he stopped breathing. Every nurse around was at his bedside to help. Tyler was in the hospital for four days recovering from this incident.
Luckily... He came out of the overdose!! After Tyler woke up, all he could ask for was to see his brother and dad. He was so happy to be feeling better!!
Thomas, my Mom, Jenny and Carly came to see him!

The story does not stop there. On week to the day that he come home from Primary's, in the middle of the night, Tyler's pump stopped working again. His withdrawals were again very severe and painful. Luckily, everyone acted very quickly, and that same day Tyler was taken into surgery to fix the tubing to his pump.

The day in the hospital, when our Dr. Interrogated Tyler's pump, and it started working again, and kept working, I believe that was a blessing from heaven. If Tyler would have been taken into surgery that day or even the days to follow, I believe that there would have been serious complicatons, and I'm not sure he would have made it.
OR
His baclofen pump malfunction could have happened while were out in the middle of the Caribbean, and he would have had to have been life flighted to the nearest hospital.
We have been so watched over by Heavenly Father, and so blessed that our Tyler is with us, and that he is doing GREAT!

Post Surgery

Tyler has this incision on this abdomen, and one half that size on his lower spine.